Bailey’s World

a glimpse into my head, my heart, and my life

Live your life September 21, 2009

Filed under: Uncategorized — baileysworld @ 10:40 pm

I hope that this blog post is helpful to even one person. I want to be honest and open about the way my epilepsy makes me feel and the reaction that I have to it. So here goes.

Most of the time I just feel like it is what it is.

God gave this to me and Jesus did so much to die for my sins. He saved my life! So who am I to complain about anything at all?

I do complain. I’m human. Everyone complains.

But I feel like I shouldn’t because this is what I’ve been given and it’s just the way it is.

A sort of zen existence of you will.

I don’t like having epilepsy but I’m coming to peace with it.

So that’s how I feel almost all the time.

But then when the seizures actually do happen I guess I feel sad. Not angry. Not resentful. Just sad.

Sad that I lose my drivers license yet again and sad that my parents don’t have a normal healthy daughter.

This usually lasts anywhere from a couple days to a week. Then I get into the new routine of trying to adapt however I will need to and it eventually falls into place.

You can’t live your life focusing on your obstacles, otherwise you won’t ever live your life.

So after I get my new medication dose and blood tests and neuro appointments, yet again, that’s usually when I start to feel like everything just is what it is again and I’m lucky just to be alive :)

I really hope that this was helpful to someone.

Peace and Blessings

 

She Talks To Angels September 21, 2009

Filed under: Uncategorized — baileysworld @ 3:03 pm

I listen to this song so many times a day I can’t even count!

 

Something New September 17, 2009

Filed under: Uncategorized — baileysworld @ 3:02 pm

As morbid as it may sound, having a seizure makes you think about how and when you may die. This however, is not necessarily a bad thing because it makes you realize how special life can truly be!

Albert Einstein once said that there are only two ways to live your life; One is as though nothing is a miracle. The other is as though everything is a miracle.

I like the second one :)

I have recently come to discover that learning to do some things on my own in a city by myself can be pretty intimidating. But after forcing myself to do it, I felt amazing! Please do not let anyone tell you what you do or do not deserve. Try new things that are still within your health limits!

Guess what? It’s ok to have fun! Even as an adult; let yourself be free :) Experience love for someone or something. Learn something new. Even if it’s something small.

It may seem painstaking at first, but in the end it will be so rewarding to you! Even tho you may be held back by epilepsy, seizures, or something completely different, you are completely worthwhile. Prove it to yourself. Do this for yourself. Not for anyone else!

You deserve this :)

 

EEW snakes! July 18, 2009

Filed under: Uncategorized — baileysworld @ 10:57 am

I like to consider myself an open minded person. If I really take the time to think about it, I don’t hate anything or anyone… except snakes.

They seriously freak me out!

Well as luck would have it there is a large (and this is large in my opinion, I’m not sure if it actually is large or not) snake living under the steps outside my apartment building.

These are the only steps that I can use to get into my apartment!!

My dad says this type of snake is not poisonous; that it’s more afraid of me than I am of it (doubtful) and that if it bites me it’ll draw blood but it won’t hurt too much (oh goody!).

Sometimes I get stuck on the second to last step just waiting for the snake to go away so that I can finish going down the stairs! Other times I just jump down from a couple steps up hoping that I will make a big enough clearing that the snake won’t lunge out and bite me.

The first time that I ever saw the snake I was walking home and was on the phone. It was getting dark out so I didn’t even see it until I almost stepped on it and it hissed and started moving underneath me.

I screamed. Literally screamed!

My poor friend on the phone thought I was getting mugged or something so when I told her it was a snake she just started laughing at me!

I seriously have no idea what to do about this thing; I am starting to think it waits for me to get home from work. And the neighbors are probably starting to think I’m the crazy lady that likes to jump down the stairs.

Haha oh well, I guess it could be worse,

I guess it could be two snakes!

 

Wine and Welcome Cards July 12, 2009

Filed under: Uncategorized — baileysworld @ 6:38 pm

I recently moved to Des Moines, Iowa for my two year internship in Radiology. Up until now I’ve been going to school in Fargo. There’s a lot of differences that I’ve noticed between the two cities, neither of them better or worse.

Today I had one of the most bizzarre experiences of my life. Before I begin however, I would like to make the following disclaimer: Des Moines is a lovely city and all of the people that I have met thus far have been very welcoming :)

My faith is the most important thing in my life. Being raised Catholic, I wanted to be sure I found a Catholic church to go to in Des Moines. Earlier this week I located a cathedral in town and decided to try it out. So, bright and early this morning, I put on my Sunday best and headed off to worship. Little did I know my adventure had only began.

I arrived early at the cathedral, wanting to ensure a parking lot in the unfamiliar town. I waited until someone else went into the gorgeous vine-covered building so that I would know where to go. As I followed them in I realized that there were very few people in this enormous church!

I wandered down the hall and found myself awkwardly being gawked at by a red haired teenage boy of about fifteen years. I quickly ducked into the women’s room for a hair and makeup check. All good there, I continued on my way. I hurried past the gawker and was immediately approached by a woman in a white choir robe. She vigorously shook my hand and inquired who I was and where I was from.

Was it that obvious that I was new?

As I walked down the hall I saw rooms full of desks, sofas, and children’s toys. Finally I found the chapel. Home sweet home. I breathed in the familiar smell of insence and took a seat alone in on of the pews.

As time got closer to the beginning of mass, I realized that generally everyone was sitting in one area of the church… an area that I was not sitting in. Just one more way to point out that I was new in town.

That and the fact that I had not gotten the memo to wear pastels today.

At about two minutes to mass beginning a few moms came in with young children and sat down relatively near me. At least now I wasn’t sitting all alone in a sea of empty pews.

As the mass started I realized that there were only three other people there my age; a married couple and the deacon. This shouldn’t have taken me by surprise, but for some reason it did for a college town.

For those of you that haven’t been to a catholic mass, there is a point in the mass where the priest pauses and everyone shakes hands to wish each other peace. You shake hands with everyone around you and say ‘peace be with you’. Well, at this point in time during mass today, instead of everyone shaking hands there was a mad rush and everyone came towards me!

Seriously!

The congregation must have been only about 30 people, but was it really that obvious that I had never been there before?

I was all the sudden overcome by handshakes and pats on the back and questions about why I’m in Des Moines, where I’m from, what I do, what my name is, and how old I am. Someone even ran out into the commons area to grab a welcome card for me to fill out my contact information!

Eventually the priest had to calm everyone down and continue the mass. However, my embarassment was far from over.

This church performed communion in a way I had never seen before. They released groups of people one at a time to go up to the pulpit, to kneel in front of the priest and deacon and receive their communion. When my turn came I was so nervous I had no idea how I got from my seat up to the pulpit. Then, the only open place for me to kneel was right in front of the deacon (and might I say he was not unattractive).

When the priest brought the cup to my mouth I took a small sip and tried to bring the cup back down. However, he continued to tip the cup into my mouth. I ended up with a giant mouthful of incredibly strong communion wine… right in front of the deacon!

I’m pretty sure at this point my eyes were bulging out the front of my face. I couldn’t spit out the wine, but I couldn’t swallow it all at once. I swallowed it as quickly as I could, smiled politely at the deacon who at this point was looking at me strangely, and then I proceeded to hurry down the stairs and back to my seat.

The rest of the mass went on fairly normal until we were asked to pray for our loved ones that were sick or dying. Normally, you would think that this would be a time for quiet reflection and prayer. Apparently this rule does not extend past the midwest. All the sudden, in the middle of my quiet reflection, I was jolted out my seat by the loudest most abrupt soprano opera singing I had ever heard!

The clambor of me falling back to earth and into my pew disrupted at least three other people around me!

After my heart rate fell back to normal, I was able to focus on the rest of mass.

Once mass was over I was going to turn my welcome card into the basket in the back of the chapel.

Apparently that’s where I went wrong.

The second the priest bid us farewell, a lady in the pew in front of me grabbed my hand and continued to introduce me to people. She said “I’m just going to be your mother hen today! Do you need some water, or coffee, or a cookie? You look like you need a cookie, look how skinny you are!”

Haha, wow!

Meanwhile the gawky fifteen year old redhead continued to gawk with his huge blue eyes, while I retold my information everyone inquiring within earshot.

Finally, I was able to escape out to the parking lot, avoiding cookies, meetings, and possible adoptions.

I don’t mean for any of this to sound bad in any way, in fact it cracked me up!

All I can think of to say is: welcome to Des Moines, Bailey

 

Persevere February 22, 2009

Filed under: Uncategorized — baileysworld @ 12:31 pm

Hello there! I appologize for my lack of posts for the pasts couple of months.

I have been thinking a lot lately about perseverense, patience, and persistence in all areas of life (a lot of p’s, I know).

“Challenges are what makes life interesting; overcoming them is what makes life meaningful.” – Joshua J. Marine

The second part of Genesis 29 talks about Jacob being tricked into getting a wife other than the woman he loved. He worked for seven extra years, just to earn the woman he truly loved from her father.

Sometimes the best and most important things in life take a lot of time.

Living with Epilepsy can seem like a curse. There are many restrictions and embarrassments. But there are also many wonderful things to gain from it. Strength, courage, self control/preservation, and an ability to enjoy the little things in life that you maybe didn’t notice when you were able to zip around each day at 80 mph.

So many wonderful things can/will come from this shade of blue in our lives.  :)

 

Epilepsy Foundation December 8, 2008

Filed under: Uncategorized — baileysworld @ 9:09 am

As some of you know, the main intent of this blog is to share my knowledge of Epilepsy. My hope in doing this is to educate others about this seizure disorder; so that those affected by it will be perceived as normal, functioning members of society.

I am currently writing a research paper for a Medical Communications class at NDSU. We were lucky enough to be able to chose any topic we wanted, so naturally I chose Epilepsy. The main topic of my paper is the Epilepsy Foundation. This organization is a non-profit volunteer organization that was originally founded in 1967.

This website for this organization is overflowing with information about seizure disorders, Epilepsy, types and symptoms of seizures, and ways to donate to the Foundation. I encourage you all to look at their website, even if it is just briefly. Please, humor me on this one.

Here are some statistics that I would like to throw in before I give you the link to the website. Hopefully these numbers will help you to realize just how common Epilepsy and other seizure disorders are in our communities.

Currently there are 3 million Americans with a seizure disorder (that includes Epilepsy). And each year there are roughly 200,000 more cases diagnosed. That’s a lot, huh? If you’re having trouble comparing that number of people to something, here’s an example: If you’re from Minnesota you will really appreciate this statistic. At full capacity the MN Metrodome holds 63,000 people for a football game. That’s a lot of people. Multiply that many people by 47.62 (or 48 if you like a nice round number). That’s how many people in the US have a seizure disorder as of this year. And 300,000 of those people are under the age of 14.

So, on a day to day basis you probably see, talk to, or communicate with someone that has a seizure disorder. Maybe you didn’t even know it! Pretty dang cool, huh!!

So please, as I said, humor me. Look at the website and all the cool information they have. And if you have any more questions after looking at it, please feel free to ask me anything!

Drum roll please…

http://epilepsyfoundation.org/

Have a wonderful day! And if you’re in the midwest… enjoy the beautiful snow! :)

 

Letting Go of the Steering Wheel November 25, 2008

Filed under: Uncategorized — baileysworld @ 5:37 pm

One of the biggest things that I struggle with as a Christian is letting go of the need to plan every hour, every day of my life. I think this planning has become a safety mechanism for me, a way to grab control of something in a life that I personally feel has been piled high with unexpected challenges.

God asks us… commands us…. to be still. To know that He is here and has everything under control. Even when it doesn’t feel like it.

For the past few days I have had some sort of flu bug and what I perceive to be migraine headaches, on top of the usual Epilepsy. Now I know that this isn’t a big deal, it’s not a catastrophe, and it’s not something to focus on. But I am the worlds biggest planner and organizer. It’s true. I love being this way, having this control and organization in my life. But at the same time, I hate it. God does not want me to be this way. There is a very fine line between being organized, and trying to control your life.

I spend so much time praying to our Lord to use me for His will. As it says in Isaiah 6:8 ‘Here am I Lord. Send me!’. But as soon as the Lord gives me an opportunity to turn the controls over to Him, I freak out that I no longer have control.

So, in this momentous time of my life; dealing with college finals, internship applications, and money saving, I have made it my personal resolution to once and for all hand over the controls. No, this will not be an easy task and I’m sure that I will slip up. But after everything that God went thru to save my life, He deserves to be my guide.

I ask for your prayers, my friends. And in this season of worship if there is anything you are struggling with, I would love to pray for you as well!

Luck, Blessings, and Happy Thanksgiving!!!

pennsylvania-nov-08

 

The view from my window November 12, 2008

Filed under: Uncategorized — baileysworld @ 12:33 pm

How do you change the view from your window?

How do you stop looking thru that certain glass, when it’s the only one you’ve trained yourself to look thru for your entire life?

How do you improve yourself, and move forward, without someone giving you directions to the new window?

…or maybe you can look thru multiple windows?

 

Candle-light dinners October 18, 2008

Filed under: Uncategorized — baileysworld @ 10:55 am

I am the middle child of three. When we were very young my family had a tradition we liked to call ‘candle-light dinners’. It seems like we had them every week, but I honestly don’t know how often they were.

Each time, we would argue over who got to light/blow out the candles, so my parents would end up lighting them three times to give us each a chance to blow them out.

My mom would make us dinner and we would all sit around the table and talk to each other. I remember laughing a lot and really cherishing those times together.

As we got older, sports and other activities got in the way, and the candle-light dinners diminished.

Even tho we don’t have them anymore, those dinners were really special to myself and my brothers. Hopefully someday I will be able to give my kids something like that too.